Comments
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Marathon running/ general control and Type 1 diabetes
Hi
Never entered anything on a forum before and not sure if this will be of interest/ use to anyone but....
I'm a 31 year old female, Type 1 diabetic (since age of 2 years)and have been active at most times of my life. In Jan I decided I wanted to do a marathon and started training for it. At that time my
control wasn't great and I was having lots of high and low BG readings, and was struggling to work out what the impact of exercise was in the midst of this.
At the end of April I completed a DAFNE (Dose Adjustment for Normal Eating) course which has been proven to improve control and reduce HBA1c% to the 6-7 range. It's not magic, it takes time %26 hard
work but now (June) I am starting to see the improved control. With regards to exercise it means I now have a consistent base to be able to accurately work out the impacts of food/exercise on my BG
readings.
I didn't have it really well under control in May when I did the marathon, so didn't trust myself to use changes to insulin to manage my BG's while running.I therefore did it with Carbohydrate
intake, and ensured I had some background insulin in my system so my body could convert the intake to energy.
I checked out what carbs were on offer around the course(Lucozade Sport)and based on my predicted mile pace what time I thought I would get to those energy stations, and carried jelly babies (worked
for me)to supplement the gaps. Tried Lucozade Sport (LS) %26 jelly babies (JB) throughout my training to check they agreed with me.
On the day:
5:45am Normal dose of Insulatard
6am Normal dose of Novorapid with food
9am - Marathon
From training I knew I needed 15grams of carbs for every hald hour of running,which worked out as follows:
5mile point LS (19g carbs)
9 mile point (2 JB's 10g carbs)
13mile point LS (19g carbs)
16 mile point (2 JB's 10g carbs)
21 mile point LS (19g carbs)
25 mile point (2 JB's 10g carbs)
Post marathon I reduced Novorapid by 50%. Find my blood sugars drop/ stay low for 24hrs or so after exercise this intense. Also decreased my night time insulatard dose.
I ran it in 3hrs11 and am hoping next time? I will use reductions in insulin, so I don't need to consume as many carbs around the course.
I've also done a lot of mountaineering activities (incl. Everest Base Camp/summit of Kilimanjaro), so if I can help anyone with that let me know.
Best wishes
Natalie.
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Running, Hiking and Diabetes
Hi,
I've just read about your study looking for participants for the CGMS and sport. I am very interested in participating in the research and would like more information. I was diagnosed with Type 1
diabetes just over 10 years ago, and now at 22 years old I have good control with the exception of during and following physical activity. During these times I tend to oscillate between low-ish (4-6)
and extremely high (high 'teens) in a seemingly unpredictable manner (+ difficult to treat).
I look forward to hearing back from you and recieving more information on your research and CGMS in general.
Best wishes.
Brittany
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DESA Confernce
Great DESA conference in Toronto!!
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Research into diabetes control
Hi,
On your home page you say you are looking for volunteers to determine novel ways for glucose control in sport.
I am interested in becoming involved. Can you contact me on the email address?
Thanks
Mark
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research
I would really like to help out with the research you are undertaking and am keen to find better diabetic advice. However, it seems that as a Scottish resident there are barriers to being referred to
you. If I can still take part in the research, then please let me know. I would do that at my own expense if I can. Both I and my GP are trying really hard to find solutions to the problem of getting
good advice in Scotland and any help you can offer would be gratefully received.
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My son, Dannish
My son has type 1 diabetes - he was diagnosed over 4 years ago and is very well controlled. He is also an excellent sprinter and represents his county (Yorkshire) running the 200m. As he progresses
and improves I believe he will need any extra help he can get, including exoert diatary advice regarding his sprinting %26 diabetes combined.
I have a couple of questions in the first instance. 1)Are there any sports specific diabetes dieticians in the Sheffield area that you are aware of and 2) Do you know of any funding that we can 'tap'
into to help with the added costs to Dannish when controlling his diabetes due to his running. He has just turned 16 and has had his DLA drastically reduced - this will hardly pay for his energy
drinks and jelly beans now!!
Many thanks
Andrea Walker (Dannish's Mum)
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Research
Been type 1 for four or so years now, which was rather a shock considering it was after 20 years of very active sport and trying to work out how to carry on (from expedition caving to triathlon).
Great site for getting inspiration and it was also helpful to hear from Ian when he came up to Bath for the diabetes and sport evening a while back. Does that sort of thing happen in other parts of
the country? if not it should do. I would be interested in the research study mentioned on the first page, if I would be of any help to it.
regards,
Mark
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Interest in participating in study
Hi
I am 27 years old and was diagnosed with Type 1 diabetes in January 2006. I am still struggling to manage my glucose control during exercise. I am very interested in volunteering to participate in
the studies you mention on the website. I am based in London.
Bryony
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3 Peaks Challenge
In June 2008 a group of four from my church completed this challenge -climbing Ben Nevis, Scafell Pike and Snowdon in a 24 hour period. I have had diabetes since I was 8 years old. I am currently on
Humalog and Lantus. While doing the challenge my insulin levels were decreased quite considerably!
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High Bloods when running
Has anyone had problems with high blood sugars when running races ? I start a race at approx 8-9mmol finish the race at more than 22mmol. My doctor has said this is due to adrenilin, this seriously
affects my run. Any ideas??
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Sport and diabetes
I am interested in finding out more about sport and diabetes. I was diagnosed in Feb 2007 with type 1 and inject 4-5 times per day. I used to race horses as an amateur jockey on the flat and became
diabetic 1 year after stopping. I still ride racehorses and am looking to take my licence out to train under rules. I would love to race again but think it could be difficult with the weight side as
you have to fast so often. Even with training the horses I would be riding for 4 hours a day, so will need to get a grip with my glucose levels. I find they drop suddenly and it is difficult to see
the signs when you are busy and excercising constantly. If you would like me to be involved in any studies I am happy to do so and would be interested in learning anything that may help me to control
my glucose levels.
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Struggling to exercise on the pump
Hi
I have recently been put on an insulin pump (Feb 08) having been a type 1 diabetic for 26 years. I am now 36. This was done because I started having more frequent hypos with less warning and it was
thought that the insulatard that I was using as my basal insulin was pooling and then being released unexpectedly - often when exercising.
My contol on the pump has finally settled down and on a normal day i.e. a day in the office with minimal phyical activity or unusual food my control is pretty much spot on. However, as soon as I try
to exercise it all goes wrong.
I have been advised to use a temp basal rate for up to 2hrs before exercising in order to reduce the amount of background insulin in my body and to raise my blood sugar levels. I also eat a sandwich
or similar at this point without taking any additional bolus insulin. I do not even contemplate exercising unless I have a BG of 11+. I usually take some fast acting carbs too e.g. fruit juice or a
small can of coke before starting and have sweets with me. I then unplug my pump so that I have no further insulin going in. Without fail, within 20 mins my BG will have plummeted to below 3mml
leaving me feeling very unwell for several hours afterwards.
As a result of this, I have become nervous of exercising and have put on nearly 1.5 stone in weight - not helped by all the extra carbs I have been eating before and during exercising. Even normal
activities such as walking home from work have become difficult to manage and hill walking (previously my favourite activity in the world) seems completely unachievable.
Has anyone else experienced this and found a way to get beyond this stage. I am aware that it is just a case of relearning how to manage my condition, but at the minute this seems to be taking
forever. Any suggestions would be gratefully received!
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CGMS Study Trial Volunteer
I have well controlled Type 1 diabetes for 43 years. I am 46 and am wanting to run in the Flora Marathon in April 09 but am awre of the 'wall' occurring at ~18 miles and that to complete 26 miles I
will need to top up my muscles with glucose (hence take insulin, which is a bit counter-intuitive!). There are clearly risks in this and I would like to particupate in the CGMS trial to see if this
might be an option for me to get such a device and train with it such that it might warn of hypos (or of falling bs readings) before its too late.
I look forward to hearing from you
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CGMS volunteering
I've had diabetes for 9 years now and i'm 17 almost 18. Despite it hindering my performance on occasions through the years i've progressed in football well. I'm currently playing for the
Worcestershire u18s FA side whilst playing for my semi- professional football club Bromsgrove Rovers. I'm currently on the 4 injections regime and since i went on it at the age of 14 my performance
has become more consistent and purposeful. Now i've come to the stage where my sugar levels are reasonably well controlled before games but at times do let me down. I feel through this study I would
be able to gain the knowledge to allow me to have energy throughout a match and no hypos during it or before it.
I look forward to hearing from you soon.
Chris
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Research Programme
I just read your notive concerning the research programme you have established, with your request for volunteers. I am not sure what characteristics you are looking for in volunteers but would be
happy to join you, if I fitted the bill.
I am 43 years of ages and was diagnosed with type I diabetes thirty years ago.
In terms of activity, I train most days, with a mix of running, cycling, interval training, squash, golf.
If I would be of any use as a volunteer, please let me know.
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Insulin and sustained moderate exercise
I was diagnosed with T1 early this summer and have been caught out a few times by low BG through sustained moderate exercise such as gardening, touring on cycle, walking or golf. I suspect that e.g.
when cycling all day, I need no or very little Novarapid at breakfast %26 lunch (but am not yet experienced enough to experiment) as the background insulin I take early evening seems to balance my
BG. I'm pleased that this site exists because I haven't previously found clear information on this topic.
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CGMS Research
I am a 23 year old type one diabetic and I play competetive rugby. I'd be very interested in taking part in some research regarding CGMS. Please do get in touch as soon as possible. Many thanks
Mark Herbert
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Research
I would like to be considered for the new research.
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Cricket support
I am diabetic and play cricket for Lancashire CC under 17. You do not mention cricket in you list of sport and diabetics do you have any information on cricketrs who have diabetes and how they manage
in out on the field for hours.
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Research help
I am 37 and was diagnosed with Type 1 diabetes in 2000. I am currently training for next year's (2009) London marathon having completed a number of 10k races and a half marathon, as well as
long-distance cycling events and duathlons. I am interested in helping with any research you are doing.
Regards
Nigel
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golfing problems
hi im a 5 handicapped golfer and hav found i ve had numerous problems playing golf im fairly competitive and hav been fairly successful, i would b interested in trying out the pump as i do hav
problems with my diabetees at night and if i can help anyone with my experiences
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Type II Masters athlete track, road, %26 cross-country running
I am 62 and have been running for club %26 County for over 45 years. I was diagnosed type II following surgery and chemotherapy for bowel cancer.As I was tested for diabetes prior to the operation, I
must assume that the diabetes was triggered by this. However, I was warned of a pre-condition during a health check 10years earlier. I also "hit the wall" badly during my only marathon aged 39 when
leading by 10 minutes. I walked most of the last 6 miles.
I am running seriously again, 5 years after diagnosis, and have had no problems with the diabetes so far. I train up to 60 miles per week in Winter and around 30 miles in Summer, including speed work
around 6 minute mile pace.Diabetes has actually been useful to me, because of the regular check ups by the GP and diabetic nurse. It has also obliged me to regulate my eating and drinking. I have
three regular meals a day and alcohol is restricted to weekends. My appetite has always been good with a tendancy to sweet things to fuel the exercise.I have switched to slow release carbohydrates
with the occasional pudding. I get tetchy if I do not eat regularly, but otherwise no problems.
I have noticed the phenomenon of having an average glucose reading of 6 - 8 before training, but a high of 12-15 afterwards.The opposite of what you might expect. However, if the reading is a bit
higher at the start 8 - 10, then it goes down to 4 - 6 at the finish. I am only allowed three testing strips per week as my diabetes is under control, so this experiment was only performed a few
times to check that I wasn't at risk of a hypo after heavy training. I now train within two hours of eating, or have a glass of fruit juice before going out.
I appreciate that this site is mainly for type 1 sports people, but there are quite a lot of type IIs that are diagnosed late in life and contrary to all the press statements are not obese couch
potatoes.I have tried hard to find out information, without a lot of success.I did find a book called The Diabetic Athlete by Sheri Colberg an american.Unfortunately the glucose readings and drug
names are different to UK, but there is a lot of useful tips and background information on how diabetic treatment has evolved over the last 40 years. I borrowed it from the local library.
I belong to a large running club and I am also involved in organising athletics in the UK Civil Service. I would like to include links to this website on the various websites that we use.
I look forward to seeing this website develop in the future.
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Rugby %26 Athletics
42 Years now - where did the time go?
Diagnosed Type 1 at the age of 13 and began playing rugby at 14 (already into athletics when diagnosed). Top try scorer for Surrey under 15s first year playing, made final England rugby trial as a
winger and went on to play for Surrey at every age group including 10 years with the full squad.
Rather than stick to one athletics event (actually not good enough at any), rose to 5th place in the UK under 21s for decathlon. All originally done with glucose drink and, I dread to say, not too
much testing or insulin adjustment. In later years, a reduction in insulin and increase in carbohydrate with frequent testing.
Oh yes, finished 5th in the 1983 BBC Junior Superstars (had hair then).
I met loads of great people through sport and travelled well.
Just finished playing rugby due to injury; athletics ended long ago - now to look for someting else.
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CGM sports trial
My daughter,Alice, aged 15, has just been referred to your clinic. We are under the team at UCLH. She (and I) would be interested in her volunteering for your trial.
If she/we are eligible, would you please send details?
Many thanks.
Jacqueline
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Trial
Would be interested in the trial. Am 35, type 1 since I was 11. Train 3-4 times a week, mainly indoor rowing. My times aren't quite as good as Steve Redgrave's (!), but they're not too bad (6.40 for
2k) and am looking to improve this but feel like I need to get on top of diabetes first.
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Hypos
I find it difficult to exercise and keep my blood glucose levels normal despite eating more prior to exercise. I want to exercise more and reduce my waistline. I have had Type 1 foe 31 years and
heven't let it get in the way of anything else I have wanted to do.
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Trial
I am interested in the trial. Have had type 1 diabetes fro 30 years. In recent years have stared to do kayaking/canoeing.I am an assistant coach. Evening session are no problems, but struggle with
morning and all day or weekend session. White water kayaking is a big problem. I swing between hypos, which I don't recognise to extreem highs, which are even worse.
We think there is a problem with adrenaline, white water is scary. But we are stuck as to how to deal with my diabetes.Most of my kayaking/canoeing is flat water at present, but I need to do more
whitewater stuff to be able to get more coaching qualifications, expand my horizons and to have more fun.
All assistance very gratefully received.
Deirdre Hansen
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Diabetes and exercise.
As a newly diagnosed diabetic (04/12/08) i have had a huge learning curve to climb, but i am now itching to get back into exercising regularly and working out how my blood glucose levels react. If i
can help in any way i am happy to do so, especially if it can benefit my regime also. My gym sessions help me to keep fit between surfing trips and i am a little concerned what reactions i may get
when surfing for 2 hour plus sessions.
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I Have Diabetes (Type 1 )
Hi my name Danielle Bretherton im 11 I Could Diabetes when i was 4 it is very hard when you first get it but you will get used to it after a few weeks.
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reseach
I am interested in helping wth a bit of long distance research if there is an opportunity.
I am a 4th year dietetic student from RGU aberdeen currently on my B placement in salisbury district hospital wih keen interest in diabetes and sports nutrition.
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Running
I am a type I diabetic on an insulin pump (just started the pump in December'08...loving it!). I also just started running a few months ago. Sometimes I feel great; other times lousy. I experience
trouble with my legs not wanting to work right. My feet slap the pavement because of the weight I feel in my legs and sometimes the numbness in my feet. Ocassionally, I have had trouble catching my
breath. Does anyone else have these experiences? It's frustrating and I don't feel like I am progressing in my training because of these obstacles. I keep pushing myself (I am no wimp!) but it feels
like I am backsliding.
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exercise %26 Diabetes
Hello, I am a Physical Therapy Asst.from the U S A, have been to Toronto many times. I am the eqivalance of 1/2 of a Physiotherpist in Canada. We treat the patients, but we do not do evaluations,
re-evaluations, or recommendations or referrals. I am interested in the work of your center. Americans, even the Diabetics eat way too much carbohydrates %26 starches. I frequently see plates of
high-glycemic mashed potatoes %26 spaghetti served to diabetics in medical facilities; then afterwards someone checks their insulin levels %26 of course they are too high. The patients are told " You
are not controlling your blood sugar levels"
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Sports %26 Diabetes
One of the quarterbacks in the American Football Superbowl is a Diabetic. Have faith, be smart, %26 monitor your levels. Tomm
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Useful website for Diabetes Sufferers..
Just to let you know of a new website - www.mediclim.co.uk that provides free weather health alerts via email, informing subscribers in Ireland and the UK of advance weather conditions that may
trigger migraine, asthma, arthritis, diabetes or heart disease problems
Hope this is of great value to you all
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Glucose Intake
Does anybody else need substantially less glucose than that stated by those endurance athletes noted here? I do appreciate that it's a personal problem and we all have different ways of coping but
I'm a type 1 and I train and compete in Iron-distance triathlons but I find I need to take around 30-40g carbohydrate every 45 minutes to keep my blood sugar levels stable throughout training and
racing; though I need to eat energy bars rather than dextrose tablets as just simple glucose gets sucked in and spat out by my body very quickly. Trying to understand nutrition a little better, any
suggestions out there? Thanks.
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Great work
Just wanted to say that this is a marvelous website. I started training for my first marathon about six years ago and couldn't find any information out there. Doctors and nurses even at the diabetes
clinics couldn't tell me anything about prolonged sport and diabetes. These days I have a half-marathon and some high altitude trekking under my belt and I'm very thankful to find a community and
information like what you guys are putting out. Keep it up and thanks!
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CGMS Research
I'm very interested in volunteering in the CGMS study. Over the last year I have been actively training towards a Marathon and the upcoming London Triathlon. I have recently completed a D.I.A.N.A./
D.A.F.N.E. course which was very informative and I would really like to take part in this study.
Regards,
Dominic
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CGMS Research
I to would be intrested in taking part in the study I am 41 and a triathlete with a favoured distance of the half ironman distance but regularly do the olympic distances as well. I am also part of a
3 man team who is swimming the English Channel in August.
I got your details from the diabetic nurse on a DAFNE course I am taking, great course.
What is involved in this study? I live in Brighton so High Wycombe is not to far away.
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Just saying hello (first post)
Hello,
I've been lurking for some time and finally decided to sign up. I just wanted to say hello to all here. [url=http://www.thelostsurfer.com]:)[/url]
Lots of good information here. I hope I can give a little back. Sorry if this is in the wrong forum, I'm still a little new to this.
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rugby
do you have energy drink during the match.
I've been playing rugby for couple of years and I just wondered if you drink anything that's particular good?
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Really useful resources re Type 1 and sport/pumping
Hi everyone
I have had type one for about 2 years now from the age of 30. As 'luck' goes I fell on my feet living near enough to High Wycombe to fall under the remit of Chiltern Diabetes Centre and Dr Gallen's
special interest in sports and diabetes. As a result I have also been lucky enough to get the pump.
Whilst a consultation with Dr G regarding starting levels for carb replacement during the different types of exercise was a valuable start point (obviously requiring much trial and error depending on
time of day, insulin levels, duration and intensity of activity, time of month, stress levels, IOB etc etc) I discovered that there are several books, available through amazon, mainly from the US,
written by CDEs (Certified Diabetes Educators) that are an excellent starting point in terms of carb replacements (tables of bodyweight, exercise type duration) and also pump alterations for those of
us who dont have access to the excellent care available in some diabetes centres. Both books I have are a brilliant resource for any type 1 who is interested in fine tuning their control and i would
be very keen to encourage anyone to read - i know people are always referring to all the DAFNE courses and so forth but for £10 a pop I think you can learn an awful lot without spending a week of
your life on a course...please email if you are interested in the details.
The other thing I was going to say is that I have read a number of posts here about experiences with sport and pumping. I am a keen runner and swimmer. Somehow my body is just 'in tune' with swimming
and I can feel where I am at, and know exactly when I need to feed to stay there.....what is working for me currently (and when I say 'working' i mean to start and finish exercise with a BG of around
7mmol) is the following:
1) Avoid eating with bolus at all in the preceding three hours, to me this is the golden rule. I have found that however much I guestimate a reduced bolus dose, it just messes up how I feel and my
perception of where I am at.
2) Switch pump to minus 30% 3 hours prior.
3) Switch pump to minus 50% 1.5 hours prior
4) Switch pump to minus 70% 1 hour prior.
5) disconnect pump to swim and consume a marks and spencer 28g chocolate lolly (about 15g carbs)- BG would be 7 prior to the lolly
6) during course of swim (1 hour) i need to consume about 16 to 20g carbs. I use the 4g glucotabs in a handy plastic tube.
Now the bit that suprised me. I thought the lowered basal and disconnect would result in the need to bolus or at least take pump back to 100% immediately following exercise; not so, I need to stay on
-20% for a good few hours. Obviously these are for periods where I have previously basal tested so i know the 'normal' rates are correct. It takes a lot longer, and a lot more carb replacement to
achieve the redcution in insulin levels required to exercise for me, and I note a dramatic improvement in my energy levels and performance when I gradually reduce my basal. It is worth noting that my
'normal' basal rates vary dramatically between 0.3 units per hour late afternoon, and 0.9 units per hour in the early hours of the morning (and I have gradated to about 8 different rates at different
times) but the principles seem to apply similarly whatever time of day i swim.
Hope I havent bored you all to death but sharing our own experimentation and experiences is the best way of tweaking in my opinion!
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running with diabetes
i would very much like contact from Russell Cobb who featured here in May last year.
please get message to him Kath Barnard is keen to have contact.
many many thanks
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energy drinks
is there a special drink you use during sport like lucazade but for diabetics. plz reply back thanks
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Type 2 Diabetes and sport
I was diagnosed in July 2008 with Type 2 my blood sugar was 18.8 and i was 27 stone I was put on tablets and went on a diet and have since lost 10.5 stone through calorie counting and exercise, my
exercise has now intensivised and I am running (preparing for a half marathon)
I really need nutritional advice, I have taken quite a puratanical approach to my diet and avoided most food with sugar in it and am finding it tough to understand what I should eat, I am eating
baked potato's and pasta, generally a lot of carbs
If you can advise me that would be great
thanks
Craig
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body building
mark on the bodybuilding says he takes met rx, i have heard that this can cause kidney damage, can a diabetic take a protein like met rx or not?
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Volunteer for High Wycombe Research project
Hello, I'm a 100m and 200m sprinter and have had insulin dependent diabetes for 8 years. I would be keen to participate in the research project going on at High Wycombe?
Many thanks
Melanie*
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R-Lipoic Acid
As a type I diabetic, I was asking for input on the use of R-Lipoic Acid as it appears to help with transport of insulin and ameliorate oxidative complications from diabetes, so is there any
experience or reflection of its use please.
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diabetes
I dont know if anyone can help me, ive been diagnosed type one for three years and i still cant get my diabetes under control. i work as a domestic cleaner so i exercise alot but when i do my bloods
go sky high. the doctors and nurse cant seem to help me anymore. I am a mum at 39 years old, i have lost 5 stone in weight and put a stone back on and now losing it slowly again. I am very unhappy as
i dont know what else to do. i do hope someone can help me.
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